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Posted by - Sleepy Coote on December 02, 2002 at 13:41:48:In Reply to: Advice: No OSA, but UARS? posted by Jake on December 02, 2002 at 06:19:32:
Hi, Jake. You might give the Puritan-Bennet (Mallinckrodt) a call and see what they say about your data runs on the 418P. They may have some **extremely** expert tips on setting up your machine.
Here's a thought about UARS and auto-CPAP's, in general, though. Maybe the sleep-event tracking characteristics of those machines are extremely useful to UARS patients, while adequate triggering is too elusive more often than not.
Accordingly, why not set the minimum and maximum pressures identically---initially at the highest pressure your doctor will allow? Thus you are running your machine as a straight CPAP. The idea would be to collect baseline data with all the inherent weaknesses of UARS auto-triggering removed from the equation. Run that fixed CPAP pressure for two or three nights at least. All the while, continue to carefully track your sleep data. Subsequently make incremental changes, testing each one for several nights. Be methodical, controlled, and very incremental about your experimentation until an optimal fixed CPAP pressure is finally discovered based on your data as well as your own subjective assesment. Make sure your doctor approves of your pressure values as well as your experimentation.
Thereafter you may decide to experiment with auto-CPAP mode once again. Then again compare your data, and how well you subjectively feel, with that optimal fixed CPAP pressure. Perry's past posts suggest an initial auto-CPAP range that is rather narrow---only 4 or 5 cm H20.
While this kind of titration is admittedly drawn out and far from automatic, it may be the only suitable path for someone such as yourself to find an optimum pressure.
I wish you the best of luck in finding a good therapy, and I hope you get to feeling better soon.
-Steve
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