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My AutoBPAP cured me of all apneas?

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Posted by Riv on October 13, 2008 at 23:02:06:

What I'm about to write might amaze a lot of people..........I know that it astounded me and not in a good way.

Let me just write it out the best I can, it involves my doctor reading my smart card and telling me some things I can't believe, showing me some other things in my report which i know to not be true and this happened early yesterday afternoon, I then went to work. I may not remember everything that happened as I tend to block a lot of outrageous things but I'll try to explain what i can and the rest will come back to me.

Doctor's assistant takes my smart card, doctor comes in the room about twenty minutes later with my report. It was only a compliance report............I had a request I was asking him before I saw the report, a request for my complete titration study (as advised by members of another apnea forum) with apnea breakdowns included (how many apneas when I sleep on my back, how many apneas during REM sleep etc) but what the doctor told me about my new smart card report made me forget my request for the complete titration report.

Ok, first he congratulated me on only missing one night. I then told him (and my reading my 7 day and 30 day averages each night verifies it) that I've missed several nights..........He just pooh poohed it. So then I asked him what the breakdown means in terms of my AHI's or apnea events...........my reading my averages shows I'm averaging around 5 an hour and the card or screen display on my Respironics Auto BiPap might not be too accurate but he tells me that I have no apneas at all because I use the machine!

Excuse me but that either is pure "how can THAT be???????????????" or it means that I don't have apnea at all.

I have never heard of anyone having no apneas on a nightly basis because he uses his machine.

Have you? Please let me know.

So I expressed my incredulousness and in my quiet, gentlemanly way but of course my disbelief quickly got under his skin.

I remember a couple of things, I remember after my titration study that one of the techs told me when i woke up that I probably didn't have apnea.............but then the doctor gave me his report that I had moderately severe apnea (an AHI of around 21) and that all apneas stopped at 19.........Another thing i remember was that one of the doctor's aides told me on the phone that my titration number was 10 and then she later said it was 12........and another thing was that the doctor was supposed to be ordering a much better machine for me but then the story was changed that I was getting a Respironics Auto BPAP which was what I did wind up getting.

One question i asked the doctor today, I think it was an intelligent question: If I were titrated and found to have apnea while wearing a mask and using a machine then why does the machine and mask now stop all apneas? His answer was that they tried several masks on me and several different CPAP until they found what worked............that did make sense but then he told me that the only reason I have an Auto BPAP now is because "the CPAP I first had didn't work for me and i was calling him up everyday and complaining to him so they exchanged it for my present BPAP".....Never happened. I never had any other machine but my present BPAP....doctor apologized then for maybe getting that part wrong but his answer as well as his telling me that my machine stops all my apneas makes me wonder what is going on with that doctor.

I have lots more to say but I think I'd better rest now.

Hoping for some feedback, some insight, some advice.

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