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Re: Trouble dealing w high pressures

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Posted by ejy2 on August 01, 2009 at 07:12:19:

In Reply to: Trouble dealing w high pressures posted by ejy2 on August 01, 2009 at 07:07:16:

Sorry, the original message got cut accidentally -- here is the full message.

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I have been diagnosed with sleep apnea at Stanford -- RDI 16, in REM 32. Although the values aren't high compared to many, I feel very run down, which affects my work and life in many ways.

I've obtained a bi-level VPAP Resmed machine. The prescribed pressures for me, based on my sleep test, are 20/16. I've been trying to adjust to the pressures, and have managed to contain leaks, but still have the following problems:

1) After going to bed with the PAP machine, I wake up in about 4 hours.
Somehow I feel a bit agitated, occasionally my heart is beating a bit fast, so I'm forced to give up using the machine. In that state, the mask and the air is just too cumbersome. The machine seems to help some -- better than if I don't use it -- but is very far from curing me.
2) Another issue: I suffer from considerable tightness around my shoulders. Actually, if I use CPAP, I get a sense the tightness recedes a bit; if I don't at all for a while, the tightness can get very bad.

I'm puzzled by my symptoms, which don't seem typical. I sometimes wonder if somehow my diagnosis is "off" or missing something, because I don't seem cured by such high pressures and have this strange pain in my shoulders. Right now Stanford is recommending that I do a somnoplasty; I've been trying out an oral appliance (it helps, but far short from totally); and if that all fails, an MMA surgery is an option, which sounds frightening. Any tips or insights would be really appreciated!

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