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Re: Since you were born? / Titration Explained


Posted by NikkiNet on September 13, 2000 at 14:04:03:

In Reply to: Since you were born? / Titration Explained posted by Doug H. on September 12, 2000 at 17:51:17:

Oh ok, I understand now. My Pulmonologist always called this a vent check, and I have them done every 6 months. You are right, CPAP wasn't invented when I was born, wish it had been. I got my first CPAP when I was 10 (one of the youngest patients) and got my first Bi-Pap when i was 14. I am now 19. The doctors knew right away that I had breathing problems, only it was called Near Miss SIDS (Sudden Infant Death Syndrome). I have Central Sleep Apnea, due to the fact that my brainstem is very under-developed and damaged. (Damaged from a later car accident.) My sister ALSO used (her brain stem eventually developed at the age of 2) to have the Near Miss Sids, and it has been determined that, for us anyway, it is genetic. We were two of the first children to ever receive an Apnea Monitor in our state. This would alert our parents when we stopped breathing, they would run down the hall and stop to see which monitor was blinking, then revive us. This is the method we used until I got my CPAP. My Apnea, in conjuction with the unusual form of epilepsy i have, the myopathy and other disabilites acutally forms a syndrome named after myself - Baby Brown Syndrome :)

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