Re: EDS due to excessive melatonin/pineal cyst ?

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Posted by TIFANY GRAY on August 08, 2000 at 18:20:25:

In Reply to: Re: EDS due to excessive melatonin/pineal cyst ? posted by Eva Dixon on August 17, 1999 at 07:36:54:

MY SISTER HAS BEEN HAVING MIGRANES FOR MANY YEARS AND WITH IN THE LAST COUPLE OF YEARS SHE HAS BEEN HAVING PROBLEMS WITH HER HAND GOING NUMB AND HER VISION - EYS CROSSING ETC. AFTER A MRI - THE DOCTOR HERE IN NC DETERMINED THAT IT WAS A PINEAL CYST. THE BRAIN SURGEON HERE IN NC WOULD NOT OPERATE AND THEREFOR WE WERE SENT TO NEW YORK AFTER STUDIES OF EXPERIENCED DOCTORS IN THIS FIELD. WE HAVE FOUND THAT DR KELLY AT NY UNIVERSITY HOSPITAL SPECIALIZED IN THIS. A DOCTOER FRIEN OF OURS THAT HAD STUDIED WITH HIM MAD A PHONE CALL - SENT XRAYS AND HAD HER IN NEW YORK IN JUST DAYS. AT THIS TIME IT WAS 1CM. HE TOLD HER THAT BEING SHE WAS 36 MARRIED TWO SMALL CHILDREN THAT HE RATHER WAIT TO OPERATE WHEN MATTERS WERE WORSE. SOME PEOPLE LIVE FOREVER WITH THIS AND SOME WILL SHOW GROWTH. MY SISTER WAS TOLD TO HAVE A MRI IN 3MONTHS TO DETERIME THE RATE OF GROWTH AND AT THAT TIME IT HAD NOT GROWN. NOW 3 MONTHS LATE HER MRI JUST CAME BACK WHERE IT HAD GROWN AN ADDITIONAL HALF C. MY FAMILY WILL BE GOING WITH HER LOCALY TO HAVE THE XRAYS READ AND THEN SENT TO DR KELLY IN NY. WAS IS ALARMING IS THAT IN NEW YORK - DOCTOR KELLY STATED THAT THERE COULD BE 3 OUTCOMES - DEATH - BLINDNESS - OR STROKE.
FYI - LET US KNOW IF YOU KNOW OF ANY ADDITIONAL INFO ON THIS - CASES - NEW MEDICINES ETC
THANKS

TIFANY GRAY
GASTONIA NC


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