Posted by Janine on August 29, 2000 at 07:07:50:In Reply to: EDS due to excessive melatonin/pineal cyst ? posted by Rubin Naiman, PhD on July 05, 1998 at 15:25:22:
To Everyone Who Has Used This Post:
My name is Janine and due to some problems I was having, I requested an MRI which detected a 1.5cm pineal cyst/tumor. Of course this was an incidental finding and I got the runaround. I don't suffer direct complications the way many of you have noted having yourselves, although through research and the help of many of you I think this thing is related to my other problems. Reproductive situations are hormonal are they not?Anyway, I just returned from the Mayo Clinic, where once again I got the shove. Two other women from this post had told me that they went through the same thing and felt that their trip was a waste of time and dollars. I left my films there temporarily where Radiology is going to read them and get back with me. (My local doc didn't get them up there in time for my appt. so my husband had to fed-x them to me while I was there).
I just want to tell you all to continue the research and please let the rest of us know if you have a Doc that is interested in pursuing these things. I would appreciate hearing their advice, reading their materials etc. I cannot believe the disregard given to this subject! I would love to hear from any of you and thanks for being there for me these past months!
Janine