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Re: Xyrem for insomnia?

Posted by Ellie on January 28, 2003 at 12:55:00:

In Reply to: Xyrem for insomnia? posted by Xev on January 27, 2003 at 14:34:43:

Xev - Yes Zyrem can be approved to treat insomnia. My sleep specialist thought it might be the answer for me. It was a lot of trouble getting approved for the stuff but I did. I had it for several weeks before I tried it due to its reputation at the Date Rape Drug. You have to take one dose at the beginning of the night and then set your alarm for 2 1/2 - 4 hours later because it wears off quickly.

My experiences have not been great with it. The first time I took it I started at the lower dose and nothing whatsoever happened. The next week we doubled the dose and I was knocked out cold. It was rather a scary feeling. At that point I thought that maybe the dose was too high so we lowered it. IThis time it took a good 45 minutes to kick in and then I was awake before the alarm went off at 3:00 am. I took the second dose and was awake a full hour before it kicked in again. I was positively wiped out the next day and haven't taken it since. This may be all dose related but somehow this med scares me. I've talked to the Zyrem pharmacist several times about my concerns. He says people can be on this med for years once they get the right dose and it doesn't have to be increased and you do not become tolerant. I am still very skeptical and will have to be very desperate to try it again. Sorry for the long winded reply. I had been wondering why Zyrem has not been brought up on this forum before even though it's approved for narcolepsey.

Ellie

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