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Re: Well, this forum has been a wakeup call!

Posted by Deb on December 11, 2000 at 20:23:18:

In Reply to: Well, this forum has been a wakeup call! posted by Gordon on December 11, 2000 at 14:12:49:

Gordon,
I hear your concern loud and clear. I don't think any one wants to be told that they have a life long disorder that at present there is no cure for. But at the same time wouldn't it be nice to know that your not crazy and your not lazy. In stead your dealing with a chemical inbalance in the brain. I know some say others just use it as an excuse. My family does it to me all the time. But they don't live in my body. They don't know what it feel like. So I keep in mind it just their opinion. I thought the doctors were just wasting their time when they asked me to do testing. I knew it would come back negative. Guess what it didn't. It was positive! This was the gene test.
Up untill this time I could lie to myself and say no it's not true. I was in denial. I didn't want anything else to be wrong with me. I still have problems with denial at times but I've also found that with some acceptance I've been open to try some medication to help with the symtoms of the illness so I can live a more productive life. It's not the way I want it to be. But when I look at what it could be by not accepting it I realize that it's better to be honest with yourself. And since you've found this forum you won't be facing this alone. We all know what it feel like and there's alot of support hear for the taking. When I was diagnosised I knew nothing except that I would get in the car after being awake for to hours and head for school and within 20 min's I'd have to pull off the road because I couldn't stay awake. Missed alot of school that way. And my instructors thought I was bored because I was falling asleep in class. This was far form the truth. I had to quit school for safty sake. But after finding the right medication for me my life started to turn around. I would actually be awake during the day and got a day shift job. I still may have a bad day once in a while. And sometimes my bad day are from other health problems. But all in all, if the medication wasn't working my name would be "sleeping beauty" because I'd be sleeping all night and most of the day. So find out for sure does have it's advantages. The other thing is with the disablity act you don't have to tell any one about you disorder. But depending on your job
you may want to change for safety sake. Welcome to
the Narcolepsy forum. Please post again and feel free to ask what ever questions you may have. We're all here to help each other. Your new friend.

Deb

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