A great place to start Disorder information source Rated and Reviewed Sleep Links Entrance to all monitored Sleep Forums Search all of Sleepnet.com


Narcolepsy Forum
Posting

Archived Narcolepsy Forum14 viewing only. To post a new topic go to the Narcolepsy Forum Homepage.

Re:Maybe write to manufacturer? Try new doctor?

Posted by bluetang2 on August 14, 2001 at 12:20:16:

In Reply to: Re:Something positive about Ritalin! posted by T.R. on August 12, 2001 at 10:48:37:

I'm so sorry about your situation, T.R.; wish there was some way I could help. My only ideas now are most likely nothing new to you, like changing doctors and writing Provigil's manufacturer about availability where you live.

Maybe Cephalon can tell you the closest place they distribute the drug to. It would be great if they could even give you some doctor's names, too. I imagine they have an email address, but all I have is: Cephalon, Inc.; West Chester, PA 19380; USA.

I don't know how practical it is for you to change doctors, but since he's never prescribed meds for narcolepsy before, he's probably not your best bet.

I'm in the process of changing doctors AGAIN. You're right, it's kind of puzzling that he wants me to try something else even though I'm satisfied with the Ritalin. But, my real hope is xyrem (GHB,) because it sounds like it might work more directly on the cause, rather than the symptoms. Though it's not available yet, I want to be lined up with a real sleep specialist. My present doctor is technically only treating me for ADD; and he scoffed at the idea that a drug to help with sleep could help someone who's sleepy all the time--though I explained that tests show the quality of my sleep is extremely poor, and that I NEVER experience deep sleep!

So, anyway, all we can really do is cling to the hope that our disorder will someday be better understood and more effectively and easily treated; in fact, we need to DEMAND that it be. There has definitely been real progress made lately in the field---so we mustn't give up!



Follow Ups:


Archived Narcolepsy Forum14 viewing only. To post a new topic go to the Narcolepsy Forum Homepage

  • IMPORTANT : Information not intended as medical advice. If you suspect that you have a sleep disorder you should seek care from a qualified professional. Read Terms of Use.
  • The Sleep Forums are not to be used for commercial purposes.
  • Commercial products and services are not endorsed by Sleepnet.com.
  • Sleep Deprivation due to Sleep Apnea and insufficient sleep are common and can present as insomnia, narcolepsy, or idiopathic hypersomnia. In infants and children sleep problems commonly present themselves as ADD or ADHD.


Copyright ©1995-2005 Sleepnet.com., All rights reserved