A great place to start Disorder information source Rated and Reviewed Sleep Links Entrance to all monitored Sleep Forums Search all of Sleepnet.com


Narcolepsy Forum
Posting


Archived Narcolepsy Forum17 viewing only. To post a new topic go to the Narcolepsy Forum Homepage.

Medication Roller Coaster - Need Advice

Posted by Jayde on January 29, 2002 at 23:06:58:

Hello Everyone:

It has been a while since I have been here and I have missed ya'll. I knew your support was helpful but I just didn't realize exactly how much. I hope that there is someone out there who can help me. I thought life was bad when I failed my classes (and for those of you who remember my struggle with college classes last semester, yes I did fail ALL of them).

Here's the deal: Since diagnosis in June 2001 I had been on Provigil. I was fine to function on it as long as any activity I did, did not require much thought. I was dazed and confused quite often. I didn't know what day it was sometimes, I couldn't talk right and I would stutter. I assumed this somehow had to deal with the narcolepsy not the Provigil. I didn't think much of it - just suffered through it- until someone mentioned experiencing some of the same things. I immediately changed to Cylert and I began to get better. My mental functioning ability was slowly returning. Eventually, the Cylert didn't work quite as well but M.d. wouldn't increase it. His suggestion: Add a small amount of Provigil back in there. Initially I didn't want to but I got desperate so I did. Then come to find out - the provigil decreases the effective of Depo-Provera Injection which I use for birth-control. And now, I am back to the goofiness again. I once again asked M.D. to help me and again he declined.

I do have an appointment on Monday, Feb 4 at Stanford Sleep Clinic at Stanford University. I know it is only a few days but I was desperate. I asked my primary M.D. for ritalin or dexedrine to get me through until the appointment. I am starting a new semester and I'd prefer not to have a repeat of the last. He humored me and gave me ritalin 10mg twice a day. I quit Provigil sometime last week and this weekend I fell hard. I have been so tired it ain't funny. Monday and Tuesday I went to work to get necessary things done then went home to sleep. I was just flat knocked out. The ritalin didn't make a dent. Tonight I took 20mg (bad, I know) but I am extremely desperate. It is like I am just hitting a wall.

If anyone has any ideas or suggestions I would greatly appreciate it. I am scared. When the ritalin didn't make a dent - it freaked me out. I know there are others who are worse off than I, but I need to find a way to get out of this and be able to function.

Thanks,
Jayde

Follow Ups:


Archived Narcolepsy Forum17 viewing only. To post a new topic go to the Narcolepsy Forum Homepage

  • IMPORTANT : Information not intended as medical advice. If you suspect that you have a sleep disorder you should seek care from a qualified professional. Read Terms of Use.
  • The Sleep Forums are not to be used for commercial purposes.
  • Commercial products and services are not endorsed by Sleepnet.com.
  • Sleep Deprivation due to Sleep Apnea and insufficient sleep are common and can present as insomnia, narcolepsy, or idiopathic hypersomnia. In infants and children sleep problems commonly present themselves as ADD or ADHD.


Copyright ©1995-2005 Sleepnet.com., All rights reserved