Narcolepsy Forum Posting

Posted by PemaKundal on April 04, 2002 at 11:12:20:

In Reply to: Re: provigal/celexa side effect? posted by michelle on April 03, 2002 at 19:38:04:

Thank you for your response ... I also thought it too little. Moreover, it's been difficult to get these medications filled here in the regressive former Confederate public of Tennessee.

AND ... I also tried a follow-up post. I've been having some other side effects involving some sexual (can we use that word here?) dysfunction. It was a problem I honestly addressed I tried to explain (lacking the entire lexicon of medspeak) with both accuracy and decorum.

But that post was pulled, I assume, because the moderator is squeamish about, well, you know, those things having to do with (as the Church Lady would say) our naughty parts. And for that I feel insulted. I'm uncomfortable discussing this matter with my physician (a woman who's made it clear she has similar Puritanical proclivities), so I was counting on this form -- an audience of folks who share similar pathologies and treatments.

But apparently Sandman found my concerns unworthy (or perhaps non-Christian, non-Taliban, or otherwise failing to rise to his standards of moral appropriateness).

Problem is, I can't get answers about any of these matters from my physician (who at this large, Southern teaching hospital) is too busy to return phone calls -- or remember my name for that matter..

Then there are the phamacists who eye you up and down and mutter remarks toward you as if they see as a junkie -- the guy who will take his ritalin and sell it at the nearest playground.

I'm weary of all of it, can get very little help and am convinced that I'm the only one who cares. Thus my vow to from this day dispense with all of the wonder drugs no one will take the time to help me adjust to: Provigil, Ritalin, Celexa.

For a few months, I had some hope. No more falling asleep in the car or doing meetings. Last year marked the first time I sat through an entire moving without falling asleep. Sometimes, I wish they hadn't held out what looked like hope, only to keep pulling it back and making it more difficult to receive.

I can't speak for the rest of the states, but if you're living in Tennessee, even in the so-called progressive city of Nashville -- don't get narcolepsy.

If you do, move. There's no support group for you, but that's the least of it. There's no help for you. At all.

Thanks for the forum. Thanks for letting me know the reality of the situation...that's it's quite nearly hopeless.

Follow Ups:

• Re: provigal/celexa side effect? Sandman 12:43 4/04/02 (1)
  • Re: provigal/celexa side effect? PemaKundal 11:29 4/15/02 (0)

Copyright ©1995-2005 Sleepnet.com., All rights reserved