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living with narcolepsy

Posted by doggie groomer on August 04, 2002 at 17:07:41:

I was diagnosed about a month ago and my doctor prescribed provigil. It is not working anymore and to get the doctors around here to understand this is impossible!
My profession is a mobile dog groomer and I think the biggest problem I am facing is trying to get my customers to understand that this is a serious disease. I get the common remarks" Just take a nap if your'e sleepy." Duh, what genius has said that to you guys before. anymore I am getting pretty depressed because I can't do anything like I used to do. I was active in crafts and my job and lately I feel like I just want to lay down and die. I know this sounds harsh but I have no energy after the tiniest of chores. My family doesn't understand because they want to blame it on my weight. i am 6'0" and 215 lbs. Every doctor I went to said the same thing. Lose the weight and you'll feel better. i even had one make the comment, being a woman I just have to deal with living with stress and quit complaining about tiredness because everyone does. Can you believe this thinking? I finally found a neurologist who diagnosed me but it seems like he's a little slow on explaining this disease to me. I have found out more on the internet than from him.

Anyway I just needed to vent because no one around seems to understand what I am going through and I only wish we had a support group here locally so I could really see how thi s can affect me for the rest of my life. By the way I just turned 30, heck of a way to remember your 30th birthday huh?

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  • Sleep Deprivation due to Sleep Apnea and insufficient sleep are common and can present as insomnia, narcolepsy, or idiopathic hypersomnia. In infants and children sleep problems commonly present themselves as ADD or ADHD.


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