Narcolepsy Forum Posting

Posted by spot on August 13, 2002 at 08:13:57:

In Reply to: N and college don't mix, help? posted by bre34nt on August 09, 2002 at 16:03:45:

Sry, I didn't read all the posts, so I may be repeating something...

When researching narcolepsy, I looked particularly for therapies and strategies for school; my son is only in grade 2 so this is a major focus for me to help him acheive personal success and skills with his education.

One item I consistently came across was the difficulty maintaining a focus, especially under stress or within a time limit. So while study skills and such are important, many of those accomodations he can make for himself. But the medical articles I read and the psychologist my son saw both stressed that testing and evaluation of what he learned should be adjusted so that the narcolepsy doesn't interfere with that evaluation. ie. no time-limit/extended time to complete tests (alternatively, 15 segments with opportunity for breaks); oral testing, because some ppl respond better to that, and timing the evaluation so that it does not occur during most common sleep attacks (eg, not in afternoon - the most difficult time for him, etc). Anyway, they point is that if you have a diagnosis, I would approach the school (bring back-up evidence! *medical/educational articles, doctor's recommendations, etc) and express that you can maintain the work, ur studying, etc but that their evaluation methods hinder your ability to participate. There is no good reason they can't make reasonable accomodations. Get informed on medical support etc and the school's policies. They certainly have their own protocols written up to support students who are blind/deaf/or have other disabilities requiring extra support so that they can participate equally in education. That YOU TOO!!

good luck

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