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Re: Heat tolerance

Posted by T.R. on August 13, 2002 at 14:07:48:

In Reply to: Heat tolerance posted by spot on August 08, 2002 at 06:39:38:

Too young for narcolepsy??? Maybe you should find another physichian. You can`t bee to young for narcolepsy, it`s only more difficult for children to get diagnosed, because it`s much more difficult for them to explain their situation. Often they don`t even know that it`s something wrong with them at all. Appart from being weird, that is. I have had narcolepsy all my life, although the disorder didn`t became a real problem to me untill I was 29.

Winter is the worst time for me now. I take 20 mg more Ritalin on winter days, and still the days are not good. Without meds I`m almost not able to stay awake on cold days at all. My head will be aching and I will have constant sleep attacks.

As a child I had very few sleep attacks, the main symptom was automathic behavior (REM sleep when appearantly awake - often labeled as "daydreaming" or "lack of concentration"). I don`t remember if this was worse when cold, but I was always freezing as a child. The other kids used to play in the snow. Not me, only after a few minuites I felt as if knifes were cutting through my fingers and shoulders. I have never thought of this in connection to narcolepsy before, but as it`s mentioned - I was freezing a lot more than normal kids.

Before I got meds I used to freeze in connection with sleep attacks. But in winter it`s the opposite. When I come from outside on a very cold and freezing day I start feeling very warm on my way up the stairs and my head starts aching. Inside my appartment I can do nothing but head for the couch. If I sitt on a chair I will fall. On the most unlucky days I also have cataplexy attacks which paralyzes my hands, so I can`t take of my coat and shoes, and speech, so I can`t tell people around that I have to sleep but they will notice, of course...). As I have meds now this won`t happen every winter day, but it still happens much too often. I don`t have low blood pressure.

Heat is no problem to me - of course I`m less productive when it`s really hot, but so is most people. Summer and autumn are always the best seasons for me. I pray every year that autumn will last untill christmas and that winter will be short.

T.R.


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  • Sleep Deprivation due to Sleep Apnea and insufficient sleep are common and can present as insomnia, narcolepsy, or idiopathic hypersomnia. In infants and children sleep problems commonly present themselves as ADD or ADHD.


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