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Re: Narolespsy is killing my mariage.

Posted by Linda P. on August 27, 1999 at 20:36:22:

In Reply to: Narolespsy is killing my mariage. posted by Kellie Kerschen on August 26, 1999 at 14:05:01:

Dear Kellie,

What your husband is going through is, unfortunately, part of the normal adjustment to one of the inevitably imperfect treatments for narcolepsy. As Emma said, the postings can be helpful for you and for him. I am in my 6th month on Provigil and my husband would say the same thing as you about my never coming to bed. Perhaps the difference is that I am in my 6th year of treatment for this disease and he has seen me with far worse behavioral abnormalities than staying up too late with other drugs I've been on. An even bigger difference may be that he has learned over the years not to take personally either my disease or the side effects of the medications--and this is probably the best advice I can give you. Recognize that your husband's behavior is not aimed at you but is a manifestation of a chemical and nothing he can control. Also, try to appreciate that if you've been unable to stay awake when you wanted to pretty much all your life, you'll tolerate a lot in the way of side effects for increased wakefulness. I will try to remember to ask my husband what advice he would give you, spouse-to-spouse, and will relay that to you as well. Try to be patient, if your relationship is fundamentally a good one, you can get through this.

Linda P.

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