Narcolepsy Forum Posting

Posted by fairycurse on November 22, 2002 at 13:15:52:

In Reply to: Anyone know anything??? posted by Sleepy-head on November 22, 2002 at 08:22:53:

Hi!

Automatic behavior are often mentioned like a "secondary symptom" in brouchures and from this forum, etc. it seems to be not that common. But like you I have a lot of problems with it, not at least because the Ritalin that keeps my other symptoms close to under control don`t seam to make any difference at all. I haven`t tried any additional meds for this. What should that be? I don`t tolerate SSRI-meds, and besides the sleep specialist I have been seeing doesn`t understand what this condition is about (appearantly he deals mostly with brain tumors and there`s no "other clinic" here). I haven`t been bothering him to much with it either, I have only been so happy that the Ritalin has removed the symptoms that has submitted me to so much pain in the past years (sleep attacs & headaches).

I must say I have never sold my house or done anything "unusual" at that level. I mostly perform routine tasks, as you say, but this can be rather complex things, like opening letters, answering them, filing them all in a correct manner, but I have no memory of it afterwords. The biggest problem is if someone ask me to do something that is not a routine task, which I promise to do. And afterwords I forget having promised it (if I was in REM behavior at the time) or I think that I in fact have done it, when I appearently have not.

I have also been explaining rather complex things in REM behavior at meetings, or told stories (storytelling-stories). This goes well for a while, but them I seem to skip parts and then I tend to wake. In the beginning this made me compleatly confused, but now I`m better at going on as if nothing has happend. I can walk aroud outside and cross a lot of streets, mostly I follow the route that I have planned.
I quitted my job because of this even though my boss begged me to stay, I just figured out some day it would go much to far. For instance I have done financial dispositions in REM behaviour once that costed my company money.

I`m studying at the University now, and I think I`m doing fine, but I`m not entirely sure - one reason is that I don`t really know how much of my day that is lost in REM behaviour. Also it gives me a really vivid imagination, and I`m not able to conclude if this will be evaluated as postive creativity or as beeing completly lost in my own dream world. I belive the first, but still there is a growing fear that probably will keep growing untill I get the results of my exams.

I have never lost days, but hours, yes. I thought it would be better with less stress. And I think it has been better since I stopped working, so it hasn`t worried me for months, but now it`s getting worse again, I know (even if you never know how much time you spend in REM behaviour...) I guess it`s winter, it always make me worse.
The only miracle cure I know is going to Barcelona and hang out at sidewalk resturants! But I suppose that like my you are not in a possition to do that when ever necessary...
If you find any cheaper soulotions, please let me know.

fairycurse

Follow Ups:

• Re: Anyone know anything??? TL/Wife 04:18 11/26/02 (0)
• Re: Anyone know anything??? Sleepy-head 09:49 11/23/02 (1)
  • Re: Anyone know anything??? fairycurse 14:00 11/23/02 (0)

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