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Posted by 2tired2finish on March 07, 2003 at 09:27:48:I haven't been tested for narcolepsy, but I'm almost positive I have it. The problems started very early. In fifth grade I would fall asleep on my bed after school and not wake up for two hours, eat, then go back to sleep. After my parents figured I wasn't sick, they harassed me, gave me chores, and punished me for sleeping. My mom would call me lazy and made me feel worthless. I could not fight this strong urge to fall asleep. It was impossible. Throughout the rest of my time at home it was on and off. Usually when I was involved in something I was deeply interested in, I didn't have the urges. The rest of middle school was horrible and most of highschool. How I ever graduated, I don't know. In college I slept a lot and friends would comment on it, but at least I could sleep when I wanted. My parents seperated and my mom tried to kill herself, so I moved back home. Then I got married and had a child. It was fine at first because I could sleep when she did. Now she is four and very precocious and demanding. The struggle to stay awake I'm sure is killing. The stress and the guilt. I can't do anything unless I make myself feel so guilty about it, my conscience can't take it any more, i.e. cleaning house I'm taking 50mg Aderall XR, it helped at first but I am starting to fall asleep again in dangerous situations, i.e. driving children to school. I'm not getting tested for narc. because what's the point. I've been reading the old forums and none of the medications seem to work for very long. I'm trying to go back and finish school in the fall. When I finally get my life settled I'll be too tired to enjoy it. All I'll want to do is sleep. Of course my husband doesn't understand or any family members on any side. All I hear is: eat right, exercise, what's wrong with you, why are you always so tired, your letting the clothes pile up again, go to the dr. I guess all I'm looking for is something encouraging, or someone to tell me it's alright. I've never run in to anyone with narc. and never had anyone understand what it's like. My husband tries to say he has it too when he stays out too late and falls asleep early on the couch. I need some type of support. Sorry for unloading.
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