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Re: problems with partners?

Posted by windsong on March 07, 2003 at 18:18:36:

In Reply to: problems with partners? posted by Texan_sleepy on March 06, 2003 at 13:20:25:

I tend to forget that most people don't have the luxury of a family that's as understanding as mine. Thanks for putting this up.

Our family tends to be those that get the 2% diseases. LOL Mom has said that if there's a <10% of the population attached to the name of a disease or syndrome, then there's an 80% chance that SOMEONE in our family has it.

I did have it pointed out to me, by my mom, that when a normal person gets sleepy they can fight it off with will power or some caffiene, and that doesn't happen for those with N. I do agree with the others that maybe trying regular naps would help. Also, I hate to say it, but Iagree that you should just give in to it and sleep even if you're out at a movie, a party, with family, at church.... Let them SEE how pervasive it really is and that just because you wanted to do something doesn't mean you can stay awake for it. Yes, it's manipulative, but think of it as visual aid for friends and family. By the way, if you get sleepy driving, start scoping out places to park and sleep, then do it. When you start letting them know you had to pull off the road to sleep it seems to make a much bigger impact for them. They start looking at what could happen if you fell asleep at the wrong time. At first you'll get comments like "you were only 5 minutes from the house! couldn't you stay awake long enough to make it?!" At which point you can honestly say, no I couldn't, it was park and sleep or run into a phone pole or someone else. It's not my preferred sleeping quarters, but it's better than the phone poles!

It tends to wake people up to the seriousness of the situation when you bring driving into the discussion.

Keep trying and good luck.
Windsong

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