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Re: why bother?

Posted by SheepySquirt on March 10, 2003 at 11:16:30:

In Reply to: why bother? posted by 2tired2finish on March 07, 2003 at 09:27:48:

Sorry this Is a long posting ...
What u went through with your parents was awful, I really feel for you!
You should feel good that you graduated and that you want to carry on with school.
I never made It to the end of schoolor college, I am on disability benefit as I cant really work however I am a musician, which Is sometimes draining but I can work In my own time without pressure from employees etc, and Its what Ive always wanted to do.
Its sometimes hard to find a medication that works for you but keep trying and then Its all about finding a balance, medication does not cure narcolepsy and often you will struggle to get through the day even with meds but again Its about balancing meds with your lifestyle and also It sounds like you are under a tremendous amount of stress which would certainly make you tired and make the symptoms worse.
I have often had people make comments like "oh I have that too, I fall asleep all the time" Its ignorant and It drives me nuts. Your husband really needs to stop making comments like that Its just knocking your confidence and making you feel bad.
Please please go get diagnosed If you think you have narcolepsy, then at least when people try to brush you off like that you can tell them that actually you have a disability and not to be so ignorant.
The comments never stop completely cos people just find It hard to understand but do It for yourself, It will open your options in terms of medication and help.
It Is not something that Is easy to live with and you will need support and thats why we are all here listening to anything you have to say, we all care very much!!
So stop punishing yourself, you are a very strong person to have been through all that and the fact you posted on this forum Is great, Its a good step in the right direction.
Please keep posting and we will keep listening and let us know If you decide to try for a diagnosis, and Dont just accept what one doctor says, keep fighting until you get what you want!
Take care and good look!! xxx

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