Narcolepsy Forum Posting

Posted by pthunder on March 12, 2003 at 13:30:59:

It's amazing that after reading so many of these posts that it’s like others have written my own words for me.

I can’t remember how young I was when I started to sleep extreme amounts but I know it has been a problem my entire life I am 32 now. During my school years I always had trouble getting up no matter how much I have slept. It got so bad that I was left back grades multiple times due to missing the maximum amount of days that is allowed, even after being on the honor roll the first semester each year. It hit me hard after the school took my mother to court and put me into special classes because they thought it was a home issue and a learning issue. I ended up quitting school at 16 only being in 9th grade.

I have worked hard and long to get where I am now. I am still tired all the time and I pretty much force my self to wake up every morning in most cases I sleep through the alarm and I have my roommate bang on my door sometimes immediately falling asleep again and the work secretary calls me every morning to give me a wake up call.

My symptoms are constantly tired. I have trouble falling asleep if my mind is racing but when I do fall asleep I can sleep for many hours usually around 12 to 14 hours and sometimes as much as 20.
I have IBS on top of that so I don’t eat very well and it’s always a struggle for me to have a normal stomach day as I call it. Usually within 30 minutes of eating I am making a mad dash for the nearest rest room and I try not to eat if I am not close to home.

My girlfriend says I stop breathing in my sleep so I believe I have sleep apnea on top of it all.

Lately I have been forgetting simple words or things that I commonly would know how to say.

Currently I am on celexa and I am trying to get into see a neurologist that I found that specializes in sleep disorders. My appointment is in JULY, 4 months from now!

The celexa has made it so I don’t wake 7 or 8 times a night. It was like someone or something would wake me up and then I would fall back asleep. The worst part of the celexa is that I bite down pretty hard at night that my jaws are sore all the time. I tried Prozac in the past and thought I was going to break my teeth.

Work lately has been and issue I am a system administrator and when I started the job part of the agreement was that I could make my own hours. 10 am seems to work perfectly for me but issues with my new boss and people feeling like I was getting special treatment they decided that need to be here as early as possible which so far has been next to impossible. I usually sneak in between 9 and 10 if something breaks when I am not in yet I get a very angry wake up call from my boss.

I am sorry for the long post but I would love to hear other people’s comments on what I am going through. I have not been officially diagnosed with N but my normal doctor said it’s possible.

Thanks,
Paul

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