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EDS & alternatives to Provigil?

Posted by needtosleep on March 13, 2003 at 11:58:16:

Wow - I wish I had found this forum earlier. What a wonderful source of info! I no longer feel set adrift and alone.

My diagnosis in Jan '03 was idiopathic hypersomia/EDS with mild cataplexy and neuropathy in my hands & feet. My test results fell just outside the definitive cut-off for narcolepsy, so he came up with this diagnosis instead. He also said it's like my internal clock is off-kilter because I'm a total night owl.

Prescribed a combo of 200 mg Provigil and 10 mg Lexapro daily (Provigil in the am, Lexapro in the afternoon). I've been taking these since Feb. 1st. I'm not taking well to Provigil - it makes me nauseous (even with food), have blurred vision, blinding headaches, and I have the stoopids. I'm still tired all day. I have zero sex drive. I'm constantly thirsty (and glad to know the urine odor isn't just me!). Another side effect I've experienced is that my sleep quality at night is bad.

I've tried taking the LexaPro without the Provigil and the side effects are definitely lessened on those days, so I'm pretty sure it's the Provigil.

I also don't like the fact that Provigil "may" interfere with birth control pills. I can't change the BCP I currently take as I can't tolerate the higher dosage ones.

I go back tomorrow for my first follow-up appointment. I trust my doctor, but I'm just wondering what options I may be presented with.

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Archived Narcolepsy Forum22 viewing only. To post a new topic go to the Narcolepsy Forum Homepage

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  • Sleep Deprivation due to Sleep Apnea and insufficient sleep are common and can present as insomnia, narcolepsy, or idiopathic hypersomnia. In infants and children sleep problems commonly present themselves as ADD or ADHD.


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