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Re: New to this....

Posted by kelley_asher on August 04, 2003 at 14:18:30:

In Reply to: Re: New to this.... posted by Suz on August 04, 2003 at 11:07:05:

Yes, I have been to alot of those sites, but it all seems so generalized and I am having trouble figuring out exactly where I am at with this. It is very fustrating.

Another thing that bothers me is just the act of taking daily medication to funtion. I have never been good with doctors and meds. In fact I found a lay-midwife for my last two pregnancies and delivered my children at home because my dislike is THAT stronge.

I guess that I expected to "get all better" after taking the meds for a while. The fact that it hasn't happened, and worse what happens when I stop for a day, is a little scary. And I do not like being scared. Am I always going to be like this? It took me about 15 years to figure out I had this, is it going to take me another 15 to learn to cope with it?

I understand about the employer. I am sorry that has happened to you. It's wronge, illeagle and unethical for companies to do so. But it still happens with little or no conciquence. Especially in this current economic crisis. I was recently forced to tell my employer that I had N. I really did not want to. It had been a particularly difficult day and it didn't matter how meny meds I took I could not fight the cataplexy. They wanted a doctors excuse on why I could not work that day. When I handed in the excuse (my employer requires that it have the diagnosis and prognosis on it) I was painfully aware that I was hired as "limited term" and they did not have to keep me at the end of the contract.

There is a lot of fear on my end. It seems that this diagnosis has brought a lot of answers to my life. It has also brought on a whole new set of questions.

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