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test

Posted by Spot on October 28, 2004 at 22:57:20:

stress continues to build...finally going for appt for study results. Two doctors who feel it's N, plus the sleep dr whose comments on my chart were "narcolepsy, cateplexy, sleep paralysis". As it turns out, my history is a textbook of N, though I'd never connected all the dots until I had to learn more about it. Symptoms are so bad i had to go on sick leave 5 weeks ago because i'm barely alert after 4 hours, and I spend every day losing concentration/memory/focus.

BUT! during my test, I didn't have REM sleep during any of my naps. The night tech did mention that I dreamt ALOT overnight, but I don't think that means anything diagnostically? I'm freaked that I'll get a pat on the back and sent on my merry little way. I already had a full physical (blood-chem request looked like the periodic table) and I'm told i'm healthy, healthy. but not really. i'm off work, if i'm trying to focus for too long I get headaches, I don't even mind the napping...the worst is all out brain revolt going on. I can't remember anything. I can't even remember that i'm forgetting something. When it's gone, it's gone! i envy ppl who stand in a room wondering 'what was i looking for?'. i don't even remember I was looking for something. Caller ID tells me someone phoned and I have to call them back to find out what we talked about. Other times, I'm my normal self. I have no way of knowing when I'm in automatic behviour mode. I'm carrying around a little book now to keep track of everything I say or do...I can't trust myself to retreive the memory. Like, if I know I have 5 things to do tomorrow, through the day i'll mentally go through my list. One time I'll get 3 and have no idea what the other 2 are.....10 min later I can get a totally different 3 from the list, the other 2 are lost. Other times all 5 roll off my brain and 'of course i'm not going to forget them..' HA! i got the book when I finally realized I have no control over my brain. Friends are pretty supportive. If we have plans they phone a couple times to confirm (read: remind) me. One friend does it lots, but I think she's got a betting pool going, cuz it's hit or miss whether i'll remember it one day to the next. Just depends on what time she calls. Blips during the days when my eyes are open but i'm not there. Sigh.

Does anyone else have this extent of automatic behaviour/awake-but-off? I've been charting it for the doctor, but it's hard to know when it's happening. I find out after I wasn't all there.

Without the REM sleep, I'm starting to wonder if I have some sort of perverse Alzheimer's disease or something.

Any thought please? I know I'll get my results next week, but since i'm there, i'd like some help knowing what questions to ask.

thanks so much.

spot

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