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Posted by seabrooke on September 02, 2005 at 23:48:03:In Reply to: Narcolepsy posted by eggshells on September 01, 2005 at 22:01:44:
Hi,
First off I would approach this problem with only your husband in mind. "Love is an unselfish act," as songwriter Berry White once said. Sure its hard for you and your kids because your involved but I saw alot of ?anger? in your post. Could I be wrong about that???
You have to understand that nothing can be done about alot of the complaints you made. No matter what anyone else may tell you narcolepsy is never controlled 100% Plus you knew before you married him that he had narcolepsy. So it wasn't like you didn't know what you were getting into.
First off your husband is a tuff guy. MORE TUFF THEN YOU COULD POSSIBLY IMAGINE!!! Why? Because most people with narcolepsy do not work because narcolepsy is such a chronic illness. So before getting upset with your husband think about how many narcoleptics live off disability! Would you rather your husband continue working or would you prefer to live on a disability income?
I every so often clean the grounds and houses in the price range of half a million dollars and more. I through the years have seen the so-called "perfect families" living in these houses. Well I will tell you that some of these people, after watching how they raise their children, are not suited to be parents! SOOOO your complaint about how your husband sleeps all the time doesn't make him a bad father, nor will it effect your childs developement in life! A harsh reality in life for children is that they must grow in knowledge. Your child should be old enough now to have a talk to him concerning his father. You need to explain to your son that "daddy has a disease" and the doctors can't do anything about it! Anyways I believe that if you really do love somebody that love is unconditional. (for better or for worst, through "sickness" or through health...)
Narcoleptics cannot stay awake or remain asleep for long periods of time! So your going to have to get use to it. I'm sure your husband has already tried meds for these problems already. Some narcoleptics can live normal lifes while others struggle! So if you think for one minute that your husbands sleepiness is do because he has poor sleep habits, doesn't sleep at night, etc... then I would suggest that you educated yourself "medically" on the topic of narcolepsy! Because these reasons would be beyond the truth for why you husband cannot stay awake or asleep over long periods of time!
If your husband refuses to see a doctor concerning his narcolepsy then I will tell you the reason why he doesn't. First off he has already been diagnosed. Second of all what do you expect the doctors to do about it? The only thing they can do is give him a pill and send him home! Thats all!!! This is also something you need to come to terms with concerning your husbands narcolepsy. We are brought up in a society where we believe that if we get sick you go and see a doctor and they fix the problem. Well I'm sorry to say but not all illnesses can be fixed, including narcolepsy.
Ask yourself this question: "If my husband was sleepy all the time because he has MS, epilepsy, etc... would I still feel the same way I do now concerning his narcolepsy?"
- Re: Narcolepsy seabrooke 00:07 9/03/05 (0)
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