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Re: Can one be narcoleptic but not nap?

Posted by Willow on April 12, 2007 at 13:11:22:

In Reply to: Can one be narcoleptic but not nap? posted by Joy on April 12, 2007 at 08:52:28:

So your question is could someone be an N, and still be a successful working person? There are all stages of N, from wanting a nap in the afternoon, to sleeping 24/7 if possible. In the early stages of my N, I used to work 40 hours a week, take care of a house, two small children and a yard, etc. And if I sat down to watch TV, I would immediately fall asleep. But it didn't hurt my life, it didn't ruin anything. I was still able to handle everything. Move forward 20 years, and I am sleeping 18-20 hours a day, only getting up to go to work. then coming home to sleep again until I had to get up. I'd set the alarm every day. And reset it for an hour or two later, over and over again. Clearly I needed to see a Doctor, becuase this just wasn't working. It had changed gradually over a period of years, getting worse and worse, so gradually that I didn't even notice until I was wasting so much time and so tired all the time, that I had to go spend a copay of about 1800 dollars, to find out just what was going on with me. I was diagnosed about 25 years after I originally noticed that I was sleepier than everyone else, and I could fall asleep at the drop of a hat. In the last five years, I had never watched an entire movie or an entire hour of TV. It was beginning to intrude on my hours of work. I was getting more and more tired, and unable to handle work and even something so minor as washing dishes or washing clothes at the laundromat. It had clearly taken over my life, gradually in the last years.

But trust me, if you had real N, there would be no way you could lay down and NOT sleep. Sleep and awake gets mixed up, and no matter whether you are a type A or not, you could no longer maintain that kind of awake schedule. We seem to sleep when we are awake, and be awake when we are sleeping, it is so mixed up. So I am wondering if you are worried about "catching" it. I don't understand what you are trying to say here. Has your Doctor suggested you have it? It doesn't seem to be that sleep is a problem for you.

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