Posted by herman on July 01, 2008 at 06:12:44:In Reply to: Re: Feeling desperate posted by baobabble on June 30, 2008 at 17:47:34:
I suffered from insomnia a few times and ironically I think it was due to narcolepsy and the incredible stress and anxiety it was playing in my life. I took ambien and had some really weird awful dreams on it. I tossed it out. I then took clonopin which at least knocked me out but made me very sleepy the next day. I still take it if I'm in an "unfriendly to narcoleptics" place in my life and getting stressed out. Xyrem is supposed to be the best for a deeper sleep but it is out of my price range. Talk to your doc about it. Maybe you can get it cheaper--check it out.
The first time I read your entry, I skimmed through it and mostly looked at the meds/drugs. Upon reading a second time, I can say that the themes of isolation desperation and loss of hope are much like periods of my life with narcolepsy. But these feeling are mostly when I'm in a slump in my life. Something that pulls me through is when I think of my situation as just a bunch of "bad chemistry" running amuck in my brain and ruining my day. I imagine life as good but I have a negative/sleepy chemical filter trying to convince me otherwise. That sometimes helps me detach from the experiences and look at them rationally. I get hope when I read about the research that is being done with the chemical orexin which seems to be the key ingredient to helping narcoleptics. Google Clinical Trials. Maybe you can participate in a trial study. In terms of love relationships, I've seen that even some of the best have a certain edginess and shades of unhappiness in them. That philosophy helps me not get too down on my own life experiences. We're all stuggling--even the non-narcoleptics!! Good Luck!!
- Re: Feeling desperate baobabble 15:42 7/01/08 (1)
- Re: Feeling desperate herman 05:40 7/02/08 (0)