Posted by NapGirl31 on August 13, 2008 at 09:49:58:
In Reply to: Re: Long awaited diagnosis posted by Eph2vv89 on August 12, 2008 at 10:46:41:
Well it is official as of today. I went for my follow up with my neurologist and he told me that the test results confirmed his suspicions, I have N w/o C. He said I fell asleep 5 out of 5 times on my naps and my average sleep time was 5 minutes. I was so happy to finally have an answer that I could have cried! My husband is very understanding but I'm sure he was getting irritated at me telling him that I was tired all the time, etc., etc. And I am elated to think of how much more energy I will have now to play with our soon-to-be 3 year old daughter, not to mention I wont have to find ways to sneak in naps every day at work (hopefully....). Anyhow, my doc. gave me a sample of Provigil to take w/ me plus a script for a free trial and a 90-day supply to see how I do on it. So far so good I guess - I took my first pill before I even left his office, LOL! I'm grateful to have been referred to this doc.
Here is something I found on the web that I sent to my husband, I found it fairly accurate and maybe it can help someone else explain just how awful having N can feel:
"It's hard to explain the difference between my condition and ordinary tiredness but scientists have estimated that the intensity of exhaustion a narcoleptic feels can best be compared to how most people would feel if they missed three consecutive nights' sleep. It is almost painful, and eventually impossible, to keep your eyes open."
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