Posted by JOHN on January 10, 2000 at 21:36:43:
I am a recent college graduate and was recently diagnosed with narcolepsy; I am 22 years old. I basically came to the realization (on my own) that I had narcolepsy due to extreme daytime sleepiness and inability to awake in the morning. I visited the U of Michigan neurology/sleep center and was diagnosed with the disease two weeks later.
Narcolepsy has affected every facet in my life from my family, friends, sex life, and choosing a career, etc. I have been experiencing daytime sleepiness/hypnogogic hallucinations since the age of 15, but do not have cataplexy.
I drank rather heavily in college and continue to have around 8-10 drinks on the weekends. Throughout college, I would find myself sleeping late into the afternoon after a night of hard drinking; my hangovers were unbelievably rough to cope with. And I always slept more than my peers. However, I thought my sleepiness was due to eratic college schedule of pulling all nighters and partying excessively.
I know that the makers of Provigil advise that people who use the drug avoid alcohol, but at this point in my life I feel I'm going to have a hard time completely abstaining from alcohol. I still feel the need to unwind and have a few drinks on the weekends with friends.
In addition to this, I have not told any of my friends about my recent diagnosis, as I do not want their sympathy or pity. I cringe at the idea of even having to explain any of this to my friends. I hope that by doing this, I won't ruin relationships, but who knows. I will most likely only tell those who are extremely close. After all, who wants to be labeled as abnormal or out of the ordinary and go on and explain the specifics?????
If there are any other narcoleptics who are in the same postion as I am in terms of wanting to continue drinking occassionaly, please feel free to share your thoughts. I am equally interested in others opinions and/or experiences with Provigil as well as Ritalin and other drugs.
In college I used unprescribed Ritalin (that I obtained from a roommate) to study for exams and write papers, etc. In retrospect, I think Ritalin was better for me in terms of maintaining a level of alertness that I'm comfortable with on a day to day basis. Although Ritalin made me a bit jittery at times, I did not experience the fogginess that I have experienced of late with Provigil. The only problem I have with Ritalin is that there is uncertainty as to whether it is neurotoxic/addictive.
Right now, I am on my first week of Provigil taking 100 mg in the a.m. and 100 mg at mid-afternoon. My neurologist said that this is done to avoid headaches. After the first week, I will be taking 200 mg every morning.
So, far I am skeptical about the drug. The first three days, I did notice a marked change in my overall state of alertness. However, on the fifth day, I seemed to be extremely spaced out. And it was a distinct feeling of being "spaced out"-- one very different from my natural, day to day spacy feeling when I was not taking the drug.
Does this feeling ever go away???
thanks for your time and please write back if you have the time
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