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Posted by Jennifer on July 25, 2000 at 19:55:18:

I just got my diagnosis today and feel it was a mixed blessing. I am glad to be getting help as I am always deperately tired and have become a "hermit" as my friends call me. Yet, my doctor said that even with medications and naps, I will never be "normal" and I will never have the energy that others have. It is depressing and scary and I cried when I got home. I am just recovering from being off work for a year due to some serious surgeries and don't know how to tell a new employer about my diseases or the fact that I will have to have so many doctor appointments. I had a pump installed into my abdominal wall and I have to have it refilled every two weeks. I think many employers will think I am more trouble than I am worth. All I know right now, is that I am always too tired to do anything. Does it get better with medications? Please tell me it does. My friends and family get tired of my never wanting to do anything. I am sick and tired of being sick and tired! Can somebody who has been through the treatment a little while tell me what happens and how much improvement they have seen? I am glad this forum is here and thank you in advance to anyone who can offer me a little advice and encouragement.


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