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Posted by Sammy on July 31, 2000 at 08:40:21:DEAR GANG,
WELL, I SAW MY NEURO (ALL 3 OF THEM) THIS MORNING AND RECEIVED MY DIAGNOSIS AS NARCOLEPSY / CATAPLEXY. THIS HAS GIVEN ME A SIGH OF RELIEF. IT MAY BE A BIT ABSURD TO WANT THIS DIAGNOSIS BUT IT WAS THE ONLY ONE THAT MADE SENSE AND IS NOT LIFE THREATENING FOR ME.
FOR THOSE OF YOU WHO MAY NOT REMEMBER EARLIER THE NEURO PLACED ME ON CLOMIPRAMINE THIS WAS TO HELP WITH THE CATAPLEXY. IT HAS HELPED. I HAVEN'T FALLEN OVER FOR A MONTH. WHAT A WONDER. THE ONLY PROBLEM BEING IS THIS DRUG CAUSED SEXUAL DYSFUNCTION. NON ORGASMIC!! EWWWW!! REALLY THAT IS A PROBLEM AS SEXUAL ACTIVITY IS RATED AS 3 TO 4 WORK METS FOR THE HEART AND IS MY FAVORITE EXCERCISE. I DID EXPLAIN THIS TO THE DOCS AND THEY THEN GAVE ME A NEW RX FOR A DRUG CALLED NORTRIPTYLINE 10 MGS. THIS ONE I TAKE IN THE EVENING. I MAY HAVE TO INCREASE THIS ONE UP TO 50 MGS BUT WILL START WITH A LOW DOSE AS IT CAN CAUSE RAPID HEART BEAT. OF COURSE THATS THE LAST THING I NEED!! I RETURN TO SEE THE DOCS IN 2 MONTHS. WE ALL HAD A NICE LAFF AND SMILE.
I TOLD THE DOCS ABOUT MY CONTACT HERE ON THE NET AND THIS SITE AND BELIEVE IT OR NOT THEY ALSO COME ON LINE AND READ IN HERE. THEY AGREE WE ARE THE BEST SOURCE OF INFO FOR EACH OTHER AND FOR THEM ALSO. KEEP UP THE GOOD WORK SANDMAN.
DOC ALSO MENTIONED THAT IF I DEVELOPE EDS TO THE POINT THAT IT IS INTERFERING WITH MY LIFE HE MAY PUT ME ON THE PROVIGIL. BUT SINCE I AM UNABLE TO WORK BECAUSE OF THE HEART DISEASE I AM NOT TOO WORRIED ABOUT THE NAPS AT THIS POINT.
CASEY - DOC SAID I COULD DRIVE AS LONG AS THE CATAPLEXY AND EDS REMAINS CONTROLLED BUT IF IT GOES OUT OF WHACK THEN HE HAS TO REPORT TO THE DOT. I DON'T DRIVE ANYWAY AT THIS POINT AS I HAVE HAD TO SIGN AWAY ALL OF MY POSSESIONS BECAUSE OF THE HEART DISEASE AND DISABILITY. I STILL WON'T DRIVE TOO SCARED. IN ONE OF OUR DISCUSSIONS YOU BROUGHT UP THE POINT THAT NOT EVERYONE CAN AFFORD TO STAY HOME.
WHAT I WOULDN'T GIVE TO BE ABLE TO GO BACK TO WORK AND NOT OWE 65,000.00 IN MEDICAL BILLS. WHAT I WOULDN'T GIVE TO NOT HAVE TO SIGN OFF MY POSSESSIONS AND DIVORCE MY HUSBAND TO PROTECT HIS CREDIT. WHAT I WOULDN'T GIVE TO BE THIS AGE AND BE VALUABLE BEYOND SOME KIND OF A MEDICAL FREAK.
WELL, ENOUGH TODAY. I JUST WANTED TO SAY HEY AND ENDED UP RATTLING OFF.
PEACE AND SLEEP WELL
SAMMY
- Re: Open Mouth--Insert Foot Casey 18:07 7/31/00 (0)
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