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SOREM


Posted by Pat on September 10, 2000 at 07:41:16:

In Reply to: How many naps during your MSLT (part 2) posted by reatha on September 08, 2000 at 21:31:50:

Sudden Onset REM is what sets us apart, generally. It's my understanding that cataplexy by itself generates a narcolepsy dx, and SOREM 3 out of 5 naps generates a narcolepsy dx, even without the genetic marker. Sleep without REM as recorded via the MSLTs, as far as I know, would generate an Ideopathic Hypersomnolence dx.

There are theories that we straddle the sleep world in our waking moments without the clear initial other stages of sleep - which may explain HH, sleep paralysis, and the often (all the time?) vivid dreaming that we experience. It would help explain why we're so susceptible to being over tired - we don't have a cushion of "normal", we go right to unconsciousness. That theory makes sense to me.

Fear countered with hope of a dx is a very natural response. My thoughts are with you.

After my polysomnography, which was normal, I had to blink back tears when the doctor told me it wasn't narcolepsy. I didn't WANT the disorder, I just couldn't imagine going back to my life and trying to function anymore. He said as long as I was at the sleep clinic and they were scheduled anyway, I might as well stay for the MSLTs.

Well, I'm very glad I stayed.

In retrospect I realize I wanted an answer AND a solution. The jury's still out as far as the solution is concerned - but I think it's a good thing to get an answer. There is life after a narcolepsy dx, just ask us! If it's something else, you'll figure out what needs to be done with that, too.

Good luck.

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