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Narcolepsy Conference Oct. 20-23, 2000


Posted by REMgazer on September 24, 2000 at 09:39:21:

Narcolepsy Network 2000 Annual Conference
(info as of September 3, 2000 - long post but worth it)

Announcing the one and only conference of its kind bringing people
with narcolepsy together each year at various locations throughout
the United States. [Time to nap included.]

Narcolepsy Network 2000 Annual Conference
"Better Communication - Better Living"
Saturday, October 21 - Monday, October 23, 2000
St. Louis, Missouri

PLACE: The Holiday Inn Select, 811 North Ninth Street, St. Louis,
Missouri, 1-800-289-8338 or 314-421-4000.

TARGET AUDIENCE: All persons who have narcolepsy, their families and
friends, caregivers, teachers, counselors and sleep professionals.

LODGING: We always suggest sharing rooms; we'll help if we can. Call
the hotel at 1-800-289-8338 or 314-421-4000 for reservations. The
code for the Narcolepsy Network conference is NAR. Rates for a single
and double are $89 plus tax and $99 plus tax for a triple or quad.
The cut-off date for these rates is September 20, so please reserve
early. After that date, the hotel cannot guarantee availability.

FOOD: Your registration fee includes continental breakfasts all 3
days. Lunches are on your own, so those who wish can nap. There is a
moderately priced restaurant in the hotel and a number of other
places to eat in the neighborhood. Saturday night's riverboat cruise
and dinner are included. If you are a vegetarian, you MUST notify us
when you register.

TRAVEL: AMTRAK has kindly offered us a 10% discount on the basic
coach rate. Call 1-800-USA-RAIL. Mention the Narcolepsy Network
conference and code #X73N-966. Be sure you arrive at the "downtown"
station. You should probably take a taxi from Amtrak to the hotel. If
you take the Metro, get off at the "convention center" stop. If you
drive, the hotel has parking at $8 per day with in and out
privileges. For those who are flying, TWA has offered us a 10%
discount off all F25 and Y25 fares (first class and unrestricted
fares) that are non-stop flights to and from St. Louis and 5% off all
others. Call 1-800-325-4933 M-F from 7am to 7pm CST and mention the
Narcolepsy Network and agreement #V17993. If you are flying and
traveling alone, the Airport Express for $10 one way or $18 round
trip is the best way to get to the hotel. Taxi fare is about $25 and
can be shared.

INFORMATION: Contact the Narcolepsy Network 513-891-3522, e-mail:
narnet@aol.com or Niss Ryan, Conference Chairperson 914-834-2855,
e-mail: nisssvry@aol.com. We will send you any further information we
have when we receive your paid registration.

PROGRAM

FRIDAY, OCTOBER 20
6:00pm-9:00pm Registration and hospitality session for those arriving
the night before the conference program begins.

SATURDAY, OCTOBER 21
8:00am-9:00am Registration and continental breakfast
9:00am-9:15am Welcome
9:15am-10:15am New Developments in Our Understanding of Narcolepsy:
Dr. Jerry Siegel
10:15am-10:30am Break
10:30am-11:15am Communicating With Your Physician: Dr. Robert Clark
11:15am-12noon Communication With Yourself: Panel
12:00noon-2:00pm Lunch (on your own)
2:00pm-2:45pm Communicating With Legislators and Agencies: Dr. Frankie oman
2:45pm-3:30pm Updates on Medications from Orphan Medical and Cephalo
3:30pm-4:00pm Coffee Break
4:00pm-5:00pm Informal Communication on Research: Emmanuel Mignot, M.D., Ph.D.
7:00pm-10:00pm Riverboat Cruise, Dinner and Awards. No addresses, just fun.

SUNDAY, OCTOBER 22
8:00am-9:00am Continental breakfast
9:00am-10:15am The Brain's Hormonal Stress Response and
Susceptibility to Inflammatory Disease: Esther M. Sternberg, M.D.
10:15am-10:30am Break
10:30am-11:15am Successful Communication With Social Security: Phil Waterman
11:15am-12:00noon Narcolepsy Network Annual Meeting
12noon-2:00pm Lunch (on your own)
2:00pm-2:45pm Seniors With Narcolepsy - Communicating Life's Lessons:
Panel, Susan Zafarlotfi, Ph.D., Moderator
2:45pm-3:30pm Communicating With Your Narcoleptic Child: Gila Lindsley, Ph.D.
3:30pm-4:00pm Coffee Break
4:00pm-5:00pm Communicating With Others Who Have Narcolepsy - the
need and uses of support groups and the internet; Susan Sagusti and
Michelle Hibbard

MONDAY, OCTOBER 23 - YOUTH DAY
(for everyone but the focus will be living with narcolepsy as a young person)
8:00am-9:00am Continental breakfast
9:00am-10:00am Opening Comments: Gila Lindsley, Ph.D. and Susan
Zafarlotfi, Ph.D.
10:00am-10:15am Break
10:15am-12noon Open Discussion (topics related to communicating
successfully with family, school, friends, dating, first jobs, etc.)
12noon-2:00pm Lunch (on your own)
2:00pm-3:45pm Open Discussion
3:45pm-4:30pm Summary: Gila Lindsley, Ph.D. and Susan Zafarlotfi, Ph.D.

---

REGISTRATION FORM
(please include full payment with your registration)

Name:
Address:
Company or Sleep Center (if applicable):
Phone & Fax:
E-mail:
List family members and/or partner you are registering:

EARLY BIRD RATES are valid until October 8. If you register after
October 8, pay the second rate listed. Registering early saves you
$10.

[ ] MEMBER (if 2000 dues are paid): early bird = $75, after 10/8 = $85
If you have not paid your 2000 dues, please include it with your
registration fee ($25 for individual, $50 for professional). A big
thanks to all our continuing members! You help make this conference
happen!

[ ] NON-MEMBER (includes membership for the rest of this year and
for 2001, NO RENEWALS, new members only): early bird = $110, after
10/8 = $120

[ ] MEMBER'S FAMILY MEMBER OR PARTNER: early bird = $60, after 10/8 = $70

[ ] STUDENT MEMBER (primary, secondary, or college): early bird =
$60, after 10/8 = $70

[ ] STUDENT NON-MEMBER: (includes membership for the rest of this
year and for 2001, NO RENEWALS, new members only): early bird = $95,
after 10/8 = $105

TOTAL AMOUNT ENCLOSED: _____________

UNLESS you specifically ask not to be included, your name will be
listed with other attendees for the purpose of staying in touch after
the conference. [ ] Check here if you do NOT want your name included.

Makes checks payable to: Narcolepsy Network, Inc.

Mail registration to:
Narcolepsy Network, Inc.
2000 NN Conference Registration
10921 Reed Harman Highway, Suite 119
Cincinnati, OH 45242
513-891-3522 / 513-891-3836 fax

We will accept CREDIT CARD payments (VISA and MASTERCARD only) by
regular mail or fax. DO NOT send your credit card information by
e-mail. It is not secure to do so. With your registration, please
send:
Name as appears on credit card:
Indicate whether it is a Visa or Mastercard.
Credit card number:
Expiration date:
Signature:


WANT TO SPONSOR SOMEONE WHO CAN'T AFFORD TO GO? Contact the
Narcolepsy Network National Office. Many would be so happy to have
your help.

LIMITED SCHOLARSHIPS are available for those who can't afford the
registration fees. Contact Niss Ryan, Conference Chairperson
914-834-2855, e-mail: nisssvry@aol.com for more information.

This information has not been posted to our website yet but you can
learn more about the Narcolepsy Network by visiting
http://www.narcolepsynetwork.org, e-mail: narnet@aol.com.

WHAT IS NARCOLEPSY NETWORK?
Narcolepsy Network is a national nonprofit organization founded in
1986. Our members include individuals with narcolepsy, their families
and friends, and professionals involved in the study and treatment of
narcolepsy. Our goals are to serve as a resource center, assist
support groups, educate the public, facilitate early diagnosis,
protect the rights of those with narcolepsy, and encourage ongoing
scientific research. Membership includes (1) The Network, our
quarterly newsletter; (2) a copy of the booklet Narcolepsy: A Guide
to Understanding; and (3) a list of available educational materials
and area support groups. Join Narcolepsy Network and become involved
in improving the lives of people with narcolepsy. Our membership is
open to all who share an interest in narcolepsy and other sleep
disorders.
...
Please feel free to pass this information on to others who may be interested!
laura j. evert
columbus, oh usa
Narcolepsy Network Board of Trustees



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