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Posted by Lorna on September 28, 2000 at 12:35:00:Dear all,
I seem to suffer from cataplexy. I am waiting for a diagnosis (could be some time since I live in England).
I completely collapse in frustration or anger. I find myself unable to move for several minutes, sometimes stuck with my mouth open (not a pretty sight I'm sure!). I often cry tears. My husband is nearly always there but several months ago my husband was away on business. My small four year old daughter had an awful tantrum which I was unable to help her out of. As my frustration built up I collapsed. My poor daughter was distraut and I was lying on the floor unable to reassure her. She was lifting my hand a dropping crying 'mummy'. My other two year old was also there. I don't know what to tel them.
You know, I still don't know whether it is cataplexy/narcolepsy for sure. My doctor said things like 'what do you want from me?' and 'are you an anxious person would you say?' . I am a happy, well-adjusted person I believe. I am afraid I all this time it is taking to find a medic who knows about narcolepsy I am going to lose a great deal of self-confidence and belief.
My husband believes in me - I am beginning to doubt myself. Could I have made this up - given I knew nothing of narcolepsy from the age of seventeen (when this first happened) to the age I am now, twenty-eight.
Thanks for letting me rabit on... Does anyone know if I could have anything other than narcolepsy? Reassure me I am not going mad!!!!!!
I would love to hear other people's descriptions of their cataplexy. Also their sleep paralysis.
Hope your all having good days!
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