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Maybe it's not obstructive apnea?

Posted by carpediem on March 18, 2003 at 16:40:03:

I was diagnosed with obstructive sleep apnea and subsequently had a lot of surgery, soft palate reconstructiong, tonsils removed, etc.

I felt great for about a week and then felt tired and in a "fog" again. I was retested at a sleep lab, only to be discovered to have more apneic episodes and borderline "narcolepsy" sleepiness. MSLT bordering on severe.

I decided to go ahead with the CPAP option. I felt better for a week or so. (I have to admit I did have problems with mouth breathing etc. and I've resorted to mouth taping, chin straps, humidifiers, etc and can sleep somewhat successfully now.) However, I notice my symptoms are still present. I have a theory that if i have some type of other problem, I'm feeling the initially benefits of CPAP but just get acclimated to it.

I know I need another study to check my pressure and to see if they are adequate but I feel that I just am not breathing enough at times if that makes sense. Even during the daytime when I'm awake, I feel like I take very shallow breaths.

The reason why I'm posting is that I'm wondering if there is anybody out there who has had similar problems and was initially diagnosed with obstructive sleep apnea but eventually was diagnosed with another sleep problem. specifically, some form of central sleep apnea, a neuro-muscular problem, a comibination of OSA and narcolepsy, etc.

The main reason I ask is that I don't fit the classic picture of OSA. there was initial suspicion for OSA because I did have a crowded throat, (big tonsils, floppy palate, etc), but other than that, I'm average weight for my height, don't have an unusually short neck, etc.

i used to remember the days when i would wake up in the mornings feeling alert and sharp. now, it's just a "fog". any input would be appreciated.


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Archived Non-CPAP Treatment Forum13 viewing only. To post a new topic go to the Apnea Forum Homepage

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