Looking for advice on options
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Looking for advice on options

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Posted by ahr on July 17, 2008 at 19:52:22:

Hello all, I have just been diagnosed with moderate OSA - here are my results
F, 28, 170lbs (gained 40lbs after I got mono 3yrs ago which is when my EDS started)


Sleep onset: 30seconds, sleep efficiency 80%
21% time spent in REM, 9% N1, 49% N2, 21% N3
1 Central Apnea
3 Obstructive Hypopneas
98 respiratory effort related arrousals
RDI of 15 events per hour with oxygen saturation nadir of 93%
Blood pressure low to normal
A/H Index .2 in NREM and 2.2 in REM, Total of .6
36 spontaneous arousals
No snoring and 1 periodic leg movement

I am fearing the use of the CPAP since I'm young and un-married. I'm willing to give it a shot, but I've very claustrophobic and I'm having anxiety attacks each night thinking about it. I'd like to explore more options before I meet with the doctor again after my cpap overnight study next week.

I went to my ENT today and she suggested UPPP would be perfect for me since my tonsils are slightly enlarged and it's causing my neck to be more swollen. Since the mono I've had chronic tonsilitis so I'm not opposed to losing them - I think she recommended the UPPP since it would be better to get it all out at once, rather than going back later and having more done... ? I would also like to explore the dental devices, but then the claustrophobia thoughts come back - I couldn't even wear my retainer after a week since I'd rip it out in the middle of the night.

I'd like to hear some opinions on the surgery (and I've already heard countless don't do it stories) Anyone else that had these types of problems after having mono? Any other atypical OSA sufferers out there?

Um... sorry for the rambling...I'm just in shock about the whole thing to begin with.. I was being tested for narcolepsy - I started crying when I heard the word - apnea. yikes!

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