Re: what to do????

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Re: what to do????

Posted by Shelbyscout on May 23, 2001 at 22:53:08:
In Reply to: what to do???? posted by indianscountry on May 23, 2001 at 21:46:29:
First of all, find yourself an ENT (ear, nose, and throat) doctor who has experience and training in sleep disorders. While it may be true that a pulmonary doctor can do no more for you, that doesn't mean that no more can be done. There are several steps in between CPAP and trach.
Second, consider getting a temporary trach. Your body needs to heal and your OSA is putting severe strain on your organs. A temporary trach could save your life while you contemplate other options.
If you do nothing, this disease will kill you.
I'm not surprised to hear that your UPPP and nasal surgery did not help your OSA. Most apneas are caused by blockage in the base of the tongue, so clearing the nose and shaving the palate does nothing to stop that blockage from occurring. I think your next step would be to investigate getting your tongue treated. There is somnplasty, genioglossus advancement (GA), hyoid advancement, and MMA. Read the posts below for information on these procedures, and also try www.sleepsurgery.com .
Shelby

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Sleep Deprivation due to Sleep Apnea and insufficient sleep are common and can present as insomnia, narcolepsy, or idiopathic hypersomnia. In infants and children sleep problems commonly present themselves as ADD or ADHD.