Non-CPAP Forum Posting

Posted by Patrick Richards on October 02, 2001 at 14:42:17:

A little late on my post as I went on a trip to Hawaii 5 days after the big event. I was nervous flying and getting up early as I feel worse if I get less sleep and I was not able to get to sleep early and had to get up early.

The check in took over a hour but still best to get there over 2 hours early. The security check in at San Francisco they really check you over.

I am not using cpap as the pressure has not been set since the last two surgeries.

Anyway, no improvement and my problem with waking up at night. Have tried klonopin but not sure if I am more tired with it or not so I am off of it. Then I will see how I feel after a week or so and if no improvement back on
it and keep a close log as my thinking is still very poor.

One good think is I have a appt. to see Dr. Black at Stanford next Monday. Bad thing is my sleep study is not until January.

As far as the jaw, I heal pretty quickly so not much pain now but first few days in Hawaii after I ate my mouth really hurt. Have to eat soft foods still but I realize it has only been 24 days since they removed the wired from my jaw. Very slowly able to open it more but it will be a slow process to open it normally all the way, have to take my time.

Able to floss and brush okay from the get go and had my teeth cleaned after wires removed.

One thing that is bad, my wife and me had a long talk. She says I should think positive and I will feel better. This is really affecting my marriage. I have been married 4 years and the problem for 3 years. I know it has not been easy on my wife plus she has used the mortage to help pay
for my surgeries. Problems with the Long Term Disability do not help as that cut my cash flow in half. My wife thinks I will get better if I think better. I wish it was true.

This seems so much like a nightmare. Going to have a complete physical starting Friday and next week blood tests as my cholesterol was high before the surgery and not sure if it is the sleeping or my diet and stress. It is
hard to eat right when you are depressed.

As far as the surgery it appears that there are no problems with it so far and the feeling in my jaw and nose are coming back pretty good.

I hope that since I have not slept well for 3 years that it is just that it takes time for my body to get back to normal and not have other problems such as CO2 level. What sucks is my not getting restorative sleep and my thinking that I can go to San Francisco and park my car and since I try to
find free parking when I do go I lose my car if I don't write down where I park it if I am not very familar with the area. Last time I write down the name of the streets but they were two parallel streets as I waiting too long
to write down the cross streets.

Since Dr. Black is so knowledgeable I will see what he suggests and he can probably get my sleep study moved up.

Also a note on xyrem. I got a call from the company, Orphan Pharmaceutical and unfortunately they say they have six months to submit more data and then the FDA has six months to review it so it means it won't be avabiable for
prescription until after July of next year at the earliest.

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