Neurontin - personal update

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Posted by Scott K on August 14, 2001 at 22:42:12:
Almost 2 yrs on Neurontin now. I messed up by refusing to increase the dose when needed, and I also would REDUCE the dose I was taking during the weekends, but take a higher dose when attacks were known to be happening, (doc gave permission for this). Net effect of this though was that I simply slowed the required ramp-up of dosage levels.
Started out at 300mg. Went the bulk of 2 yrs prescribed 500 mg with permission to adjust dosage from 0 to 200% of prescribed as I wish/need. Now dose is 600 mg each day for sure and I can go up to 200% of that. I'm typically taking 900 mg each day so will have to see doc to get the prescription increased.
I'm now also taking Remeron (mirtazapine) for depression, 30 mg, and think this accounts for the needed increase in Neurontin from 600 to 900 mg that took place at the same time. BUT.... Remeron knocks you out rather nicely!
I tried lorazepan, clonazepan, trazdone, before was diagnosed with PLMS. After diagnosed sinemet was used and it worked great save for only lasting 4 hours and causing augmentation and needing massive ramp-up in dose. Permax made me sick as can be (which is normal) so was pulled off that and put on Neurontin.
I have noted my one and only trip to a chiropractor ended a PLMS attack that had been in progress. There seems to be some connection here and I have read of same. It may do you some good to speak to chiropractors as some are RLS/PLMS aware and haved adjustments that can help.
Diet is connected also. I have noted that using the "blood type diet" works, but the list of foods you have to memorize is massive. There ARE foods that trigger my attacks such as black pepper, (white pepper is a wonderful replacement). Check out the "blood type diet" and see if it helps you.
A wide range of vitamins were tried, and some herbs. Some helped for a short time. I suggest "one-a-day" vitamins and perhaps take two per day. Of special interest were iron, magnesium, potassium, folic acid, and the whole range of B vitamins as these produced some result.
And the last item... sex. Yes, it helps, attacks seem to not happen after sex at bedtime.

Follow Ups:

Re: Neurontin - personal update Kim 08:10 8/25/01 (1)

Re: Neurontin - personal update Ron 17:41 10/11/01 (0)

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